Resources

Support groups and online websites providing support and information to those who are grieving a loss through miscarriage, stillbirth or infant death:
 
In the Northern Nevada Area
 

PILSOS Support Group – 2nd Wednesday of every month 6-7:30 pm at St. Mary’s Center for Health, Suite 120, Reno, NV. Contact information: See Contact Us tab on this site or questions@pilsos.org.

PILSOS Spanish Support Group – Un grupo de apoyo para familias que prefieren hablar en español. 2nd Wednesday of every month 6-7:30 pm at St. Mary’s Center for Health, Suite 120, Reno, NV. Contact information: questions@pilsos.org

Thrive Wellness Perinatal Loss Support Group  Held virtually on Wednesdays at 12pm. Contact information: 775-525-8103 or email at  reno@thrivehere.com

The Solace Tree – Peer support groups for children, teens and young adults who have experienced the death of a sibling, parent or close friend. Website: www.solacetree.org.  Contact information: 775-324-7723 or email at info@solacetree.org.

The Doula Co-Op – Full spectrum Doula care for every pregnancy, including early pregnancy loss, life limiting conditions, and stillbirth. Contact information: doulacoop.org

On Line Resources

http://www.bornangels.com/index.html
This is a site for grieving parents who have had a baby die at any stage of their pregnancy; ectopic pregnancy, miscarriage, or stillbirth…and for their family and friends.

http://firstcandle.org/
First Candle/SIDS Alliance is a national nonprofit health organization uniting parents, caregivers and researchers nationwide with government, business and community service groups to advance infant health and survival. With help from a national network of member and partner organizations, we are working to increase public participation and support in the fight against infant mortality. Bilingual crisis counselors are available 24 hours a day, 7 days a week by calling toll-free 1-800-221-7437.

http://www.hygeiafoundation.org/
Hygeia® provides programs to educate, counsel and support families who grieve the loss of a pregnancy or newborn child, advocate for the healthcare of women and children,worldwide, and promote humanism in the education of tomorrow’s healthcare professionals.

http://messageboards.ivillage.com/iv-ppstillborn
This site offers discussion boards as well as weekly live chats for people who have suffered miscarriage, stillbirth, etc. The site includes sites for abortion, miscarriage, and stillbirth. It also has discussion boards and information on almost every pregnancy and parenting issue one could imagine.

http://www.misschildren.org/
This is a grass roots, international organization dedicated to supporting parents one to one after the death of an infant or young child. Referrals to peer contacts and ancillary organizations offered. List of Do’s and Don’ts to help bereaved parents, and a listing of groups and resources in Arizona and other states. Leader in the stillbirth certificate project for all US states.

http://www.nationalshare.org/
The mission of Share Pregnancy and Infant Loss Support, Inc. is to serve those whose lives are touched by the tragic death of a baby through early pregnancy loss, stillbirth, or in the first few months of life.

http://aheartbreakingchoice.com/
This website supports women who have made the “Heartbreaking Choice” to terminate a much wanted pregnancy. This site provides support and information for those who have undergone a pregnancy termination due to a poor prenatal diagnosis, problems with their own health, or for the health of another fetus (selective reduction).

Additional Resources and Information

If you have experienced a loss in pregnancy or loss of a child, we hope you’ll find these resources helpful to you during this difficult time. Use the plus sign to expand information.

Emotional Healing After a loss

There is not a timeline for when you will feel better emotionally, and things may never truly “return to normal,” so it is important to be patient and loving toward yourself and your loved ones. Taking care of both your physical and emotional health is necessary for your overall healing process. Here are some recommendations for self-care:

  • Focus on getting sleep every night.
  • Keep hydrated by drinking water or juice. Avoid caffeine (in coffee, tea and soda) in the afternoon, as these items may make it hard for you to sleep.
  • Eat healthy food, such as fruits and vegetables. Stay away from junk food, fast food and too many sweets.
  • Avoid drugs and alcohol as a way to cope with the sadness and anger you may be feeling.
  • Try to do something active every day once you have been medically cleared by your provider.
  • Go for a walk. Get outside for a while. Feel the warmth of the sunshine on your face.
  • Seek out quiet moments for meditation or prayer.
  • Write your thoughts and feelings in a journal. Start a blog. Find ways to express what you are thinking and feeling.
  • Practice deep breathing, taking in slow, deep breaths through your nose and then releasing the air slowly through your mouth.
  • Read books and poems or listen to music that you like and find comforting.
  • Practice progressive muscle relaxation: Lie on a bed or couch and simply be aware of your entire body.
  • Begin by focusing attention on your toes and work your way up to the top of your head. Note any tension or physical discomfort. Contract your muscles in each of those areas and then, with a big exhale, let the tension drop away.
  • Ask others for help and support. Tell them exactly what they can do for you. Ask them to help with childcare, pet sitting, grocery shopping, making meals, or just spending time with you at home.
  • Talk about your thoughts and feelings with your partner, family members and other supportive loved ones.
  • Join a support group of other parents or couples who have also experienced a pregnancy loss.
  • Try not to make big changes in your life (like moving to a new place or taking a new job) right away. Wait a few months. Give yourself time to grieve the loss of your pregnancy.
  • Consider creating a memory box with special mementos and meaningful items and/or find ways that are meaningful to you to honor your child. This could be in the form of planting flowers or a tree, or finding another ritual for your family, if you wish.

Understanding Grief and Loss

Grief is a natural part of coping and healing after loss. There is no right or wrong way to grieve, but stages of grief have been described to help people understand some of the thoughts and emotions they might experience.

These stages do not necessarily represent a step-by-step guide to grief; a person may move from one stage of grief to another, or may skip some steps entirely, only to experience them at a later time. You may find that you and your partner, two people experiencing the same loss, grieve in completely different ways and may not be in the same stage of grief at the same time. This is normal.

Common stages of grief

DENIAL is often described as a feeling of disbelief about a situation, or the thought that this just cannot be happening. Common thoughts people may have during denial:

  • “There is nothing wrong with my baby. The doctors are wrong.”
  • “This isn’t happening to me.”

ANGER following a loss may be directed at strangers, members of a healthcare team and even loved ones. The anger you may feel while grieving may disguise itself as anger about other things. It is possible that you may be more short-tempered than you usually are or find excuses to start arguments about things that wouldn’t normally bother you. Common thoughts people may have while experiencing anger:

  • “You’re wrong. You don’t know what you’re talking about.”
  • “I did everything right during the pregnancy. This isn’t fair.”

GUILT is characterized by assigning, or assuming, blame for what has happened. Common thoughts people may have include:

  • “What did I do to deserve this?”
  • “I must have done something to cause this.”

DEPRESSION is a time of great sadness following a loss. It is important to realize that depression is a stage of grief, but also can develop into a clinical problem (see “Recognizing Symptoms of Depression and Anxiety” resource page). Common thoughts people may have while experiencing depression:

  • “I never knew I could hurt so much.”
  • “No one understands what I’m feeling.”
  • “I don’t know how I’m ever going to feel better.”

ACCEPTANCE is often described as the final stage of grief. Acceptance does not mean happiness or even accepting the situation you are facing, but rather it is a feeling of integration about your loss. It is the ability to hold on to your grief, while also taking steps to move through it. You may feel that you have reached acceptance only to flip back to one of the other stages of grief. Again, this is normal.

Grief does not have a timeline. It is typical for a person to relive or re-experience any of the above stages following a period of grieving. Anniversaries, the expected date of birth, holidays, and other events may trigger your grief after loss.

Symptoms of Depression and Anxiety

What is depression?

Depression is a mood disorder that can be described as feeling sad, unhappy or having a loss of interest in daily activities. Depression can affect how you feel, act or even think, which can cause you to have trouble doing normal day-to-day activities. Some things you might experience or notice if you are depressed include:

  • Constant feelings of sadness and crying
  • Difficulty concentrating
  • Loss of interest or pleasure in things you used to enjoy
  • Avoidance of daily activities
  • Feelings of guilt, shame or hopelessness
  • Trouble falling asleep or sleeping too much
  • Change in appetite (overeating or not having an appetite)
  • Lack of energy
  • Thoughts of harming yourself or others

What is anxiety?

Anxiety is an emotion that everyone faces at different points in life. However, anxiety can be a more serious concern when a feeling of worry, nervousness or unease about a specific event, person or outcome causes such distress that you have difficulty functioning in your day-to-day life. Some things you might experience or notice if you are struggling with anxiety include:

  • Frequent worry
  • Feelings of fear or uneasiness
  • Racing thoughts that cannot be stopped
  • Heart pounding or “fluttering”
  • Feeling like you can’t catch your breath

As you are working through the various stages of grief, you may find yourself struggling with symptoms of depression and/or anxiety from time to time. These thoughts, feelings and behaviors are quite common as you grieve. However, if you notice that you are still having many more difficult days several months after the birth, or long periods of time spent feeling depressed or anxious and feel like you are getting worse as time passes, then it may be time to seek out professional help.

If there is ever a time when you begin to feel unsafe or have thoughts of hurting yourself or someone else, it is important that you seek help immediately. Bring yourself to your doctor’s office or local emergency department, calling 911 for assistance if needed. The number for the anonymous National Suicide Prevention Lifeline is 988.

Seeking Mental Health Treatment

If you or your partner continue to have difficulty coping in the aftermath of your loss, or are finding it hard to get through day-to-day challenges, it may be helpful for you to contact a mental health professional for additional support. Each person grieves in his/her own way, and sometimes we grieve very differently from those closest to us. This can result in significant conflict, anger and distress that can damage long-term relationships. Be patient. Talk openly, be sensitive to what others are feeling, and know that they are hurting, too.

If you are looking for support from a therapist, there are different ways to seek treatment. If you have insurance, you can call the phone number on the back of your insurance card and talk with an agent about what in-network mental/behavioral health services are available. Be ready to discuss some of what you have been through so that they can best match you to the appropriate services.

You can also ask your obstetric (OB) provider or hospital social worker for resources in your area. If you don’t have insurance, ask someone in your doctor’s office if there is an agency in your area that can help you. If talking one-on-one doesn’t feel like a good fit for you, you can look for an online group or support group in your area.

Postpartum Support International is an organization dedicated to helping men, women and couples coping with pregnancy-related issues, including pregnancy loss. They have a website, online and phone support groups for men and women, and state coordinators who can provide you with recommendations for helpful resources in your area.

Another online resource that can help you identify a therapist is psychologytoday.com. You can search their site by ZIP code to find a list of providers in your area; search for in-network providers; find therapists who treat children, adults or couples; and narrow down results based on specialization of the specific areas of concern (e.g., grief, loss, depression, anxiety, substance abuse, etc.).

Things to consider when looking for a therapist

  • Would you be most comfortable with someone who would meet with you individually or as a couple?
  • Would you want someone who has a specialty in grief or perinatal loss?
  • Would you prefer to meet with a male or female therapist?
  • How frequently can they meet with you, and how long is the new patient waiting list?
  • Does the therapist have morning, evening or weekend sessions available to accommodate your schedule?

It is recommended that you schedule appointments with two to three different therapists to determine which one is the best “fit” for you. It is important that you establish a comfortable rapport with your therapist because they will be supporting you during a vulnerable and difficult time. If you find after a few visits that it is not a good match, you can consider changing to a different therapist that might provide better support to you or your family.

Spiritual Help

The loss of a pregnancy can trigger intense feelings and reactions that can potentially impact every aspect of a parent’s life. Spirituality is one of them. Women and men are often struck by questions like these: How could God have let this happen to us? Did I do something to deserve this even though I try to be a good person? Where is God in my suffering? Can I be angry with God? Am I being punished?

It is important to remember that you may also feel conflicting emotions. One moment you may feel comforted by God (or whomever you name as your higher power), but the next you may feel disappointed, alone or betrayed. Whatever you feel is not right or wrong: It’s what you feel in this moment. Be cautious of what others tell you that you “should” feel. No one can know the pain you are facing like you do. There can never be enough preparation for all that you have been through. It is also complicated to grieve for what could have been. Try to be gentle with yourself and those you love.

You and your partner (as well as other family members) may be reacting differently to the loss, and that, too, can be unsettling. It is often hard to express the depth of what you are experiencing to anyone else, especially someone who might be well meaning but who says things that aren’t helpful (e.g., “God doesn’t make mistakes” or “God doesn’t give you more than you can handle” or “God has a plan, even if we can’t understand it”).

Don’t be ashamed of your feelings. What you feel is a reaction to who you are, what has happened to you, and where you are at this stage in your life. How you choose to act on the feelings you have is where your power lies.

If you feel that you need more support, reach out to someone you trust who can hear whatever you need to say. This may be clergy or a therapist, or it may be a loving friend. If you feel that the best thing you can do is to immediately jump back into your life and move forward, do so. Take the time you need to remember and mourn. You know yourself better than anyone else and the only timeline to follow is your own.

Be patient with yourself and trust that God will walk this way with you. Reach out in prayer, or whatever way is most meaningful to you. Spirituality can be explored in many ways. Journaling, painting, drawing, or immersing yourself in nature with hikes or gardening (once you have been medically cleared by your provider) are activities that can be relaxing and healing for the soul. Know that you are not alone. Let yourself be loved. Sometimes, when hearts break, they break open, and you may find that as you grieve your loss, you are led deeper into your own life and faith.

Supporting Those Who Have Had a Loss

Few people talk about the physical, emotional and spiritual impacts of pregnancy loss. This can increase the feelings of isolation that may be felt by a woman, her partner and those in her support network.

She may be more expressive than usual, or she may choose to keep her feelings and thoughts to herself. She may talk about how she feels, or she may avoid revealing this information to others. She may jump back into her daily routine, or take time out to rest and relax. She may display anger, guilt, sadness, confidence, relief or uncertainty. She may feel multiple feelings at the same time, or move back and forth between emotions. She may look to you for understanding, distraction or support. The support needed to help each woman will be based on her unique needs as an individual.

As a partner or support person, it can be challenging to balance your own emotions of loss while working to find a safe and effective way to support your loved one through her experience. Your emotions, questions and struggles are real. In order to best support her, you should first take time to reflect and become aware of your own feelings.

If you need assistance with processing your feelings, we encourage you to reach out to a mental health professional, your faith community or a support group. Your physical health should also remain a primary focus during this difficult time. Below are ways to help your loved one as she copes with the loss of the pregnancy:

  • Be present. Providing nonjudgmental support for her at this time can be a show of solidarity.
  • Validate her thoughts and feelings even if they aren’t consistent with your feelings. Her feelings are real to her. Try to avoid imposing meaning on her situation. Let her reach her own conclusions in her own time.
  • Recognize the unborn child as a life and the woman as a mother if this is what she is feeling. Regardless of the gestational age, both parents often feel an intense connection to their unborn child.
  • Be willing to help locate professional support if she wants or needs it.
  • Remember that her grief may come and go and it may not end quickly. Be patient with her and with yourself.
  • Be mindful of her physical recovery. If at any time you are concerned that she is showing signs of complications, encourage her to seek out a medical assessment by calling her healthcare provider or helping her get to the emergency room, calling 911 for assistance if needed.
  • Assist with health-related activities like providing healthy snacks, keeping water or herbal tea available, supporting adequate sleep each night and occasional naps as needed, or offering to take a walk outside, once she has been medically cleared to do so by her provider.
  • Ask what type of support she needs and wants. She is the ultimate expert on her experience. Just asking the question shows her that you care.

Partners in Grief

Pregnancy loss affects the entire family system. It may seem like most of the focus and attention is on the woman who experienced the physical loss; however, your loss experience is just as important to acknowledge.

As her partner, you may feel the need to be “the strong one” in order to care for her physical and emotional well-being. As a result, this may not leave you with the opportunity to express your own unique feelings of grief within your shared loss. It may also make it challenging to ask others for help during this difficult time.

It is important to understand that this experience of loss is a shared loss; something that has happened to both of you. You may be surprised to find that you are experiencing similar feelings of disappointment, anger and sadness as those of your partner. You may believe that expressing your sadness may make things worse for your partner, but this is rarely the case, as she needs to know that she is not in this alone.

You may be pulled to continue to try to “keep things together” and take care of business as you always have, such as returning to work or managing the household duties. Grieving styles between you and your partner will be different which can lead to misunderstandings or a disconnection with one another about the level of sadness you both feel. Sometimes loss, however, can bring you closer as a couple and as a family.

While there are no specific guidelines for grieving, there are some tips that can be helpful for the unique situation in which you find yourself. Some considerations may be:

  • Take some time off of work or your regular activities, despite the possible desire to return right away.
  • Let your family know that you may need some extra help, even if you don’t know exactly what you need.
  • Allow yourself to feel the full range of your emotions. Try not to delay or distract yourself from them.
  • Seek professional help if and when you think you may need or want it.
  • Consider journaling and/or reaching out to other bereaved parents for support.
  • Let your partner know how you are feeling.
  • Avoid drugs and alcohol as a way to cope with the sadness and anger you may be feeling.
  • Explore other outlets to express your grief, such as physical exercise.
  • Pay attention to any physical symptoms you may be experiencing (e.g., headaches, stomach upset, restless sleep) and see your medical provider if these symptoms worsen.

The journey through grief can be a long and painful process. There is help along the way. Identifying that you are also grieving is the first step in beginning to take care of yourself and one another.

Trying Again

Sometimes you may think that all you want is to get pregnant again, while at other times you may feel that you could not possibly survive another pregnancy. This kind of uncertainty, combined with intense feelings of grief, and perhaps guilt about your loss, is normal. You are not alone.

Some couples decide to try again as soon as they are medically cleared, some wait years, while others never try again. The best way to decide what is right for you is to consider your physical and emotional readiness, and then listen to your heart about whether you are ready to move ahead.

Some women become focused on the idea of getting pregnant again shortly after their loss. During this period, you may fear that you will never be able to have another baby or that something will go wrong again. This decision is intensely personal.

If you are still struggling in your grief (crying a lot, with disrupted patterns of eating and sleeping, and frequent mood swings), it is probably not yet time to become pregnant again, especially since the hormonal changes of pregnancy could deepen your sadness. If you get pregnant soon after your loss, the birth of your next child may coincide with the anniversary of your loss. While some women do not consider this a problem, others find this potentially upsetting. Some women feel that they do not want to consider getting pregnant again until after the due date of their previous pregnancy.

Talk with your healthcare team about risks for future pregnancies. If you opted for an autopsy or any additional genetic testing, it is recommended that you wait until you have the completed test results back before trying again. These results may give you the most complete information about recurrence risk and can provide helpful pregnancy management information for yourself and your care team.

You should not expect to be completely over your loss before you consider another pregnancy. As you mourn the loss of your child and begin preparing for another, it is normal to have complex and often conflicting feelings.

Some couples find it difficult to be physically intimate after a loss. The best way to resolve these differences is to talk openly and honestly with each other about your thoughts and feelings. More importantly, listen to what your partner has to say. Some couples find it helpful to seek out professional support from a therapist or clergy, or to identify a support group for families who have experienced pregnancy loss in order to work through the strain within the relationship that a loss can sometimes cause.

Physical Recovery After Loss

Expected recovery

  • It is normal to have vaginal bleeding for one to three weeks after a pregnancy loss. The bleeding can range from very light to more like a heavy period. It is also normal to pass blood clots in the first one to two weeks.
  • Most women experience slight cramping, similar to menstrual cramps. Cramping is usually worse in the first few days after the birth and should gradually resolve over the next two weeks. Applying a heating pad and taking an anti-inflammatory medication can help with the cramping.
  • You may resume normal activity when you feel able, usually a few days to a week after the loss.
  • Avoid strenuous activity or heavy lifting for at least a week or two.
  • Most women will have a period about four to eight weeks after a pregnancy loss. Your fertility can return immediately, so you must use birth control when you start having intercourse following a loss if you do not wish to become pregnant.
  • It is very important to see your provider for a follow-up visit about two weeks after the loss to make sure that you are healing well.
  • Depending on the gestational age at the time of birth, you may experience breast engorgement (swelling) and leaking of milk. Wearing a tight-fitting bra, applying ice packs to the breasts, and taking anti-inflammatory medication will help these symptoms resolve within a few days to two weeks.

Signs of complications

Please call your healthcare provider if you have any signs of a complication, which include:

  • Passing blood clots bigger than a golf ball
  • Heavy bleeding that soaks through a large, overnight menstrual pad in an hour, for two consecutive hours
  • Pain or burning with urination, or a sensation of having to urinate all the time
  • Headache, muscle aches or a general feeling of unwellness
  • Fever of 100.4˚F or higher that lasts four or more hours
  • Severe pain in the abdomen that is not improved with pain medication, rest or heat
  • Vaginal bleeding or discharge that has a foul smell
  • Vomiting lasting more than four hours

Talking to Siblings About the Loss

Children who were expecting a new baby may ask where the baby is or why the baby is no longer in your belly. The thought of talking to your child/children about losing your baby may seem overwhelming, but giving them no explanation for the loss may cause more fear and confusion.

Children need clear and honest information. Questions and reactions may vary depending on a child’s age and personality. This guide is meant to provide some suggestions for talking to and supporting your child/children following a loss.

Younger children

  • Young children may not understand what is going on, but they may sense that something is different at home.
  • If your child asks about the baby, provide a simple answer. For example, you could say something like, “Our baby did not grow big enough to be born, and he/she has died.”
  • Provide reassurance that no one did anything wrong and that you, as their parents, are both OK.
  • Young children may ask you the same question over and over. This is their way of trying to better understand what has happened. Reply with the same clear answer each time and make sure that all other caregivers (e.g., grandparents, babysitters, daycare providers, etc.) are using your same language to avoid confusion.
  • Storybooks can help you talk about the loss as well as help your child identify the feelings and emotions they may be experiencing.

School-age children and adolescents

  • Children in this age group are able to think more logically, but they still need clear explanations.
  • Start with a simple explanation such as, “Our baby did not grow big enough to be born” or “Our baby did not grow big enough in mom’s belly, and because of that our baby died.” Then listen to what questions or thoughts they have.
  • Provide reassurance that no one did anything wrong and that you and your partner are both OK. It is OK to say, “Sometimes this happens with babies and we don’t know why.”
  • They may not respond right away and may come back to you at a later time with questions.
  • Your children may demonstrate different behaviors as a result of the loss. Keep the communication open and let your children know that they can always come to you with questions, thoughts or worries.

Emotions and feelings

You can also support your children by putting words to the emotions that they may see you exhibit or that they experience themselves. It is OK if your children see you cry; you can say, “Mommy is sad right now because the baby died and I miss him/her, and sometimes when we are sad, we cry.”

Again, provide reassurance that even though you are sad, you love them very much and they have done nothing wrong. Reading children’s books about feelings and emotions can also help.

If you have questions or need further support, your children’s pediatrician is also a good resource.

Ways to Memorialize and Honor Your Baby

  • Here are just a few ideas on ways to memorialize your baby. The list is endless and as unique as your baby!
  • Create a website or blog
  • Remember and celebrate birthdays
  • Create a shadow box of the physical mementos of your baby
  • Tattoos of handprints, footprints, name, birthdate, or image
  • Attend Remembrance Walks and Events
  • Help other families who have experienced a loss
  • Stuffed animal in the weight of your baby
  • Plant trees or flowers
  • Start a foundation or fundraiser in your baby’s name
  • Make blankets, clothes, diapers for hospitals to give to parents
  • Donate to organizations in baby’s name